Charlotte Observer/The State
For now, Isabel Jurado walks and runs, plays and laughs like most 3-year-old girls.
But only for now — because if she doesn’t get medical help, her world likely will go silent, speechless and immobile in a matter of years.
A day after her third birthday on May 22, doctors first diagnosed Isabel with a rare, 1-in-70,000 disorder called Sanfilippo syndrome, or MPS III.
She needs a stem-cell transplant to block the advancing disease. Duke Medical Center’s pediatric bone marrow division has performed more transplants for MPS children than any other hospital in the country.
The problem is the Duke division is not a network provider for the Jurados’ insurance company, and the operation and treatment could cost more than $1 million.
So as Isabel’s parents, Jimmy and Leslie, negotiate with their insurer, their friends and relatives — and strangers — are coming to the rescue, unwilling to wait for bureaucratic decisions.
Tipped by: Jeff Quinton of Backcountry Conservative who tells us how we can help out.
A website (including a blog authored by Isabel's mom) has been set up at HelpIsabel.com. There is donation information here including Paypal (click on the handprint graphic near the bottom of that page.)
There are some events in the Rock Hill, S.C. area for those of you up that way and there may be some other fundraising events later this year elsewhere in S.C.
Hey Dan Amato:
I hear you're planning a trip back east.
Well, you might not want to go too far just yet; or, at least consider that you might need to return to Sacramento from time-to-time for things like depositions and court appearances.
That's right: my wife and I have scrutinized your defamatory remarks; and, over the last few months, we've had some productive discussions about you and a few other bloggers whose remarks have exceeded the bounds of what is lawfully permissible.
Didn't anybody ever explain to you the concept of "republication" of defamation? You really ought to know about this area of law if you plan to be in the blogging business.
You should consult with a lawyer before you leave Sacramento. After all, a New York lawyer will be expensive if he/she has to travel to California.
I am actually glad to hear about another republican fleeing California (I figure it's one less idiot). In fact, I wish you'd flee the country! But, of course, only after you've compensated my wife and me for your own defamatory statements and for republishing the defamatory statements of others.
In the meantime, please take advantage of the law that allows you to mitigate damages by promptly removing and retracting the false statements that our former tenants emailed you and by promptly removing and retracting your own false statements of conclusion that were based on the tenants' statements.
Posted by: Stephen Pearcy on June 30, 2005 04:39 PM